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Swing & Bling #9

SWING & BLING #9 SAVE THE DATE! Thursday, October 3rd, 2019 Swing Golf Tournament is scheduled for Thursday, October 3rd, 2019. CLICK HERE FOR SPONSORSHIP OPPORTUNITIES & DETAILS

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New Study at Stanford

Families from all over the country are traveling to Stanford for a new study on Cystinosis, a rare and incurable disease. Read Full Story 

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The Partington’s

The Partington’s Posted on Tuesday, May 21, 2013 The Partington’s 2013 HD Video CLICK HERE TO VIEW FULL VIDEO

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New drug offers hope for cystinosis

New drug offers hope for cystinosis Posted on Tuesday, May 21, 2013 By Erin Allday May 8, 2013   Before the drug Cystagon, the parents of babies diagnosed with the rare disease cystinosis were told to take their children home and love them as best they could before they died, usually before age 10. The drug was…

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