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How to Help

Jenna and Patrick’s Foundation of Hope is a 501(c)3 non-profit organization. Donation, sponsorship and volunteer opportunities are available to help us find a cure for cystinosis.

The Foundation

This website is dedicated to Jenna and Patrick Partington and every child living with the disease Cystinosis.

Our Partnership

The Cystinosis Research Foundation is the world leader raising money for the research and better treatments of this disease that afflicts both of our children and others around the globe.

"Our mission is to create awareness of this rare disease and continue to raise funds that will be directed to the doctors and researchers who have dedicated their careers to treating Cystinosis."